Wednesday, May 20, 2009

I Snuck on Here for a Quick Update....Sshhh, Don't Tell My Nurses.

Hi guys, it's been a while.

There is a lot to catch you up on and really a lot to write about. But honestly, I don't know if I have the physical strength much less emotional, to go through all of the events of the last week.

The highs were Ruben's God mommy coming for a visit. He calls her Mee Mee. She is awesome and I don't know what I ever did to deserve someone like her in my life, I'm just so grateful she is in my life after all these years (we met in college.)

Her mom came with her and that was great too, I just could not get the woman to sit down and relax she was constantly cleaning. Apparently she is happiest when cleaning, what ever works I guess :) They stayed from Wed. thru Sat.

In that time Mee Mee painted Roo's room green and blue, put up star wars decals and light fixtures, took Ruben to his last soccer game of the season, cooked breakfast every morning and gave my mom a manicure. She was determined that his room would be done before she left even if that meant her having to stay up all night on Friday night, which is what she really done.

The hardest thing for her and it was pretty hard for me too, was her having to see me like this. I was in bed most of the time they were here, in severe pain. And had several seizures in front of her. She's a nurse so she put on a brave front but I know it was hard for her. It's hard for all of them when I go into a full on seizure and all you can do is get behind me and hold my arms and tell me to slow my breathing.

I went to the Neurologist yesterday, he sees my mom and I saw him about 9 yrs ago for my migraines, so I trust him a lot more than that other doctor.

He is determined to find out what is going on. I started shaking really bad in his office and he could not believe they let me out of the hospital like this. I told him I couldn't really walk when I left but I wasn't shaking really bad. He upped some of my medications and they seem to be controlling the tremors and the seizures. He ordered an EEG test for this coming SAT. I just hope I don't have an episode in the chair, that would not be good.

I've been dealing with hospital bills today, trying to make sure I call everyone to let them know where this all stands right now.
I have got to go into the medicaid office to apply for a medicaid spendown card but every time I speak with someone there they tell me I don't qualify. So the worker at the hospital said just to take all my bills and information down and demand to fill out an application. I will at least need to rejection letter to apply for some of the charity programs the hospital offers.

I try not to let that stress me out, there's not a darn thing I can do about it. It's in God's hands and that is where I am going to try to leave it.

Some days I can walk and some days I bounce, my legs look like jello actually. I'm not driving, no heavy lifting, no sitting up for long periods of time.

For now I am realizing just how little I appreciated my life. It is so awesome to be able to walk to the bathroom by myself or load the dishwasher, wipe down the bathroom sink or just brush my own teeth.

But I can't overdo it, so I will stop here. I will try to update more on my phone, it's just the last week or so it's been to hard to even lift my hands on the keyboard or complete a thought.
But i will have to come back soon and share what my beautiful little princess did yesterday....I still can' t believe she did it, but that is another post and I have the pictures to prove it.

I'm still hanging on to you God, whether I get better or whether I don't.

Here are some photos from her visit. Don't worry I will post pictures of the finished project soon. (Oh and yes she's a red head too ;)

Ruben's last soccer game.

Roo and Mee Mee starting on his room.

Taking a break from it all to go online and play some games.


Sheryl said...

yay, i am so glad to see a post from you! you've been on my mind like crazy. i am also so glad that this doctor is going to get to the bottom of everything. or at least keep trying!!

how great to have friends that will come and help you out. and you know how much i understand taking the small things for granted. you'll be well again and you'll remember this time.

just saw that note above my button over on the side - you are too sweet!!

nancygrayce said...

I'm so thankful to hear from you! Bless your heart, you've been through it! I'm so glad your friend and her mom could come and help you for those bills....just don't let that worry you too much. I know that's easy for me to say from way over here, but the truth is, you can only do what you can do.

So thankful for this doctor and his working to get to the bottom of all this. I'm praying they can find a definite answer and one that is an easy fix! And praying that God will heal you!

Girl Child said...

holy crud mama.. I have been thinking of you often.. Im glad u are going to another doctor.. hope all goes well saturday.. let us know when u can. get well soon!!

Tanya said...

I'm glad you had a good time with your friend. This new dr sounds great too. I am praying for you.

He And Me + 3 said...

So glad MeeMee was there to help a bit. Can't wait to see that room. Hope that you are gaining strength each day. I will pray for you.
Thanks for updating us.

marla said...

I'm praying for you. the boys graduated preschool today and their last day is tomorrow. If you would like me to bring them over one day when it is nice out and take them out back to play so you can get some rest I'll be glad to. If you need meals cooked and brought over, help getting to appointments, whatever you need just ask... don't worry about it just ask! ;) Love ya, Marla

Anonymous said...

I meant take all the kids out to play, not just bring mine to your yard! ;)