Ok, so I would rather write about how wonderful life is right now but this blog is about being honest, and I'm just not a good liar.
So here it goes,
I'm tired, so very tired.
...tired of the pain, the tremors, and the seizures.
Tired of not knowing if I will be able to use my legs when I wake up every morning.
Frustrated that I can't play with my kids the way I want to. That I can't be the wife I want to be, that I can't grocery shop and plan meals and cook for my family.
Frustrated that when I went to Roo's school to volunteer I had to go in another room because I started shaking and had to be watched by someone until it was under control.
I know it could be worse and I know it will get better. I do have good days and I am so grateful for those but the bad days leave me exhausted, frustrated, and just so very tired of it all.