Saturday, September 26, 2009

Let Me Just Say...

We arrived last night, with only one small episode/seizure so I considered that to be a good trip. Now on with my post.

* I do not like to travel...well not in a car for two days with two adorably loud children.

*It's great to see my in laws they are great and I love my SIL who is on her way but is extremley loud too, hmm wonder where my kids get it? I know, I know all kids are loud but these little rascals take the cake!

*My FIL's foot is so cold, can't be good. Not sure what I was expecting.

*I knew I should have paid more attention my college Spanish class.

* I'm pretty blessed, God continues to give me the tools to handle whatever comes our way. I'm so appreciative of that.

*I'm getting awesome AUTHENTIC Mexican food every night that alone was worth the two dat trip!

* And once again hubby's Iphone rocks.



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Friday, September 25, 2009

Halfway There

We stopped in a hotel, well more of a motel last night but they had a small swimming pool that helped my aching and burning skin.
All in all, it's been a good trip. We still have both kids and hubby is still with us.

So let's see if we all make it the second half of the trip.

FIL is the same, still in lot a lot of pain and surgery set for Monday.




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Thursday, September 24, 2009

Please Pray as We Journey into the Unknown

I had asked for prayer for hubby's dad earlier this week. We knew he had a blood clot in his leg and that they were trying to get his diabetes under control before they did anything. Well we got the call today and things have taken a small turn for the worse. So Roo and I went to Walmart to buy supplies then came back home and for the last two hours I have been packing. I do not know how people pack for more than two children, we would have to rent a trailer :)

It's a 16 hour drive, I would love to be able to drive the whole way through but I just don't think my body nor my patience will let me. So we are planning on leaving early in the morning and stopping halfway late afternoon to stay over in a hotel.

The surgery is scheduled for Monday to remove the blood clot or clots. I don't know if they don't know how many clots there are right now or if it's just getting lost in translation.

It was funny today, not ha ha funny, but the other kind, you know that nudge you get to do something but you don't know why. Well Wed. are usually my complete day of rest. Mondays I clean all day, Tuesday swim class and school then rest wed and repeat the same. But I felt the nudge early today to do laundry and it's not even usually my thing to do. My aunt loves to do laundry, I have told you she's insane right?

So that is what I spent my day doing every stitch of dirty laundry is now clean and most of it packed neatly away in our suitcases. Thank you God for the little nudges.

I do have several prayer requests:

  • Please pray for my INL that God will give them peace.
  • Our trip there and back, that I stay seizure free and my body can withstand the trip and still be able to help and care for everyone once we arrive.
  • Pray for my husband, I know he is so scared of losing his father. He says that when he sees his father around our child that it's a different side that he never saw growing up. I hope God lets them get their unfinished business taking care of before anything does happen to him.
  • My mom, she has fallen back into the state she was before she went to the hospital. She's loopy and sleeps too much and can't feed herself again. But she goes to the doctor on Monday. It's still hard to leave.
  • That we make there it there with two children and return with two and not have to air ship one back. They are not the best travels :)
  • Oh and one more, don't close the screen now just one more, my family has all the sudden come down with bad coughs and colds. It started with Ruben, then Rissa, now Jose. I'm hoping it won't come my way, maybe I will get one of those masks for the trip.

Thank you my dear friends, for taking the time to visit, to pray and support and uplift me in ways you may never know.

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Monday, September 21, 2009

Diagnosed Fianally

Fibromyalgia with Seizures, it's not common for these two to go together but if Fibro is left untreated over the years you can start to have seizures because of the stress it puts on your body, or so my doctor tells me. I'm still researching.

Fibromyalgia (pronounced fy-bro-my-AL-ja) is a common and complex chronic pain disorder that affects people physically, mentally and socially. Fibromyalgia is a syndrome rather than a disease. Unlike a disease, which is a medical condition with a specific cause or causes and recognizable signs and symptoms, a syndrome is a collection of signs, symptoms, and medical problems that tend to occur together but are not related to a specific, identifiable cause.

Fibromyalgia, which has also been referred to as fibromyalgia syndrome, fibromyositis and fibrositis, is characterized by chronic widespread pain, multiple tender points, abnormal pain processing, sleep disturbances, fatigue.. For those with severe symptoms, fibromyalgia can be extremely debilitating and interfere with basic daily activities

Fibromyalgia causes you to ache all over. You may have symptoms of crippling fatigue -- even on arising. Specific trigger points or tender points on the body may be painful to touch.

Some patients with FMS have pain and achiness around the joints in the neck, shoulder, back, and hips, mine occur in the neck, shoulder, arms and shins accompanied by a burning pain almost as if my skin is on fire. Other fibromyalgia symptoms include:

abdominal pain
anxiety and depression
chronic headaches
difficulty maintaining sleep or light sleep
dryness in mouth, nose, and eyes
fatigue upon arising
hypersensitivity to cold and/or heat
inability to concentrate (called "fibro fog")
Memory difficulties and cognitive difficulties
numbness or tingling in the fingers and feet
painful menstrual cramps
poor circulation in hands and feet (called Raynaud's phenomenon)
restless legs syndrome
stiffness
Multiple tender areas (muscle and joint pain) on the back of the neck, shoulders, sternum, lower back, hips, shins, elbows, knees

For some patients, pain improves during the day and increases again during the evening, though many patients with fibromyalgia have day-long, unrelenting pain. Pain can increase with activity, cold or damp weather, anxiety, and stress. For me My pain is not so bad in the mornings but does increase throughout the day and depending on what activities I do.

It can be severely crippling if left untreated for years which is exactly what happened to me in April. In the past I have been diagnosed with RLS, restless leg syndrome, chronic migraine headaches and have has on going periods of numbness in my hands and feet and had a really bad seizure in 2001.

FINALLY, it all makes senses to me. I've had Fibromyalgia for a really long time but just ignored it until all the stress we went through in Jan with the ice storm where my mom lives and having to get her out of there and then deciding they would live here. My husband and I had to pack up their very big house by ourselves, the house was big and stuff with as much stuff at is possible could be some rooms were floor to ceiling. Hubby and I went through, boxed packed and moved it all except for help wit the major appliances. Then the stress of caring for my mom, using the Hoyer lift to get her up each day my body could not handle it and the Fribo symptoms came on full force, crippling even until the pain brought on my tremors and seizures.

I was relieved to get a diagnosis finally, but there is no cure, well man made cure, that is. I just have to take my meds, which seems to be increasing by the month, and watch how hard I push myself.
I had come across this in my research but didn't think I was right about it because I didn't think Fibro could be so very painful. Doc said it can be one of the most painful things out there.

Unfortunately , because there is no specific tests some doctors don't even believe it exists. I think this is becoming less of the case, with more education and more medications coming out that have been shown to help people control the symptoms of Fibrymyalgia.

Would love to hear from you if you have dealt with this or know someone that has.
Thank you to all those who have followed me on this journey, it's only just beginning and I know you guys will be there to hear my praise reports, rants, and whatever else God has in store for my family.




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Multitude Monday 16-26

holy experience


Another week and this time I feel I am having to really think about what I am grateful for, not because there aren't a thousand or more things to praise Him for but just because when Satan see's we are giving God all the Glory he steps in and wants to throw us off balance. I will not allow that to happen this week. I don't know what the future holds for my family or those very close to it but I do know WHO holds the future. So for today I will give Him the praises He deserves for all that He has already done.
16-26

* For God loving Principals who will hold you and pray while you are having a seizure in her office.

* My mother's health.

* One of the most Foxiest creatures God has ever made and the privilege to save her from a kill shelter last week. (will post pics soon)

* My daughter telling me how beautiful I look as soon as she sees me open my make-up bag, even though she doesn't realize I have not put a single thing on my face.

* Being referred to as Roo's mom at school and having all the 8th graders tell me just how cool he is.

* Rain

* A man that shops with me and goes and grabs a wheel chair when I'm getting too tired to keep shopping, so that I can finish my list before the week begins.

*coco Rice crispies

*crunchy peanut butter

* Curly hair

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Saturday, September 19, 2009

Just in Case You are Wondering.....

I am working on my diagnosis post. I know you all are anxious to hear what it is and I promise it will be done soon. There just seems to be so much to say and so many other things going on over here right now.

But I will say here that while extremely painful and does not have a (man-made) cure, it's not life threatening. It of course has been life altering but maybe now with the right meds and knowledge it won't have to be sooooooooooo life altering.

I would have had it up already had I not had a seizure at school on Friday. I was working in the office and my body decided to have a seizure in the principals office of all places. She was great about it though, she was talking to me and praying at the same time. She's awesome.

Prayer Requests if you feel lead:
-Mom seems to be worse since we got her back from the hospital.

-Hubby's dad has a blood clot in is leg and also has diabetes, which makes it all more complicated. The docs say if they get in and find 2 blood clots they will have to amputate his leg. They live about 16 hour from here so Hubby is going to try and speak with the doctors himself over the phone before we head that way. But it's pretty certain his dad will have to have surgery.

-My best friend of 12 years and Roo's God Mother, also the one who visited in May when I was really sick and painted Roo's room, has not been feeling well lately. Her mother is a breast cancer survivor as is her aunt, her sister had ovarian cancer at the age of 28 and had to have a total hysterectomy. Mee Mee went to have a mammogram and they found something, she is only 30 so usually it would not be a big deal but with her history it's all pretty scary for all of us who love her and for herself too, though she's good at hiding her true feelings from everyone but me!

They will get a biopsy on Sept. 30, so if you all would keep her in your prayers. Not only is she my Best friend, she is the funniest, most selfless, compassionate person I have ever known, and she is also an awesome nurse herself.

I have asked God several times this week to please stop this ride I frankly want off! He is not listening and He knows best so I will have to trust HIM!
Hope you all have a good weekend and my diagnosis is coming soon, it just doesn't seem to be so important after the request I listed here.


Wednesday, September 16, 2009

Who Am I Wednesdays



*A thankful daughter who is glad to have her mother home, thank you God.

*A daughter who never thought she would have to put diapers on her mother at the age of 60.

*A patient who finally got a diagnosis after 6 months of doctors making me think it's all in my head. (I will post about it tomorrow or Friday, promise :)

*A wife and Child of God ,whose husband is Catholic, searching for the truth and finding out some of what I have been taught all my life is not true.

*A mother who loves her son with all her heart but is so tired of hearing about Star Wars (I thought it was just a phase like Thomas the Train was but we are going on 2 yrs of this and I'm ready to move on :)

*A blogger who is amazed at all the friends she has made and encouragement she has received since starting this blog.

So who are you?
Confession is good for the soul.
Tell me in a comment or post it on your blog & let me know.

Sunday, September 13, 2009

Remembering You on Your Birthday

We thought of you with love today
But that is nothing new
We thought about you yesterday
And days before that too
We think of you in silence
We often speak your name
Now all we have are memories
And your picture in a frame
Your memory is our keepsake
With which we’ll never part
God has you in his keeping
We have you in our hearts.



Kim, it does not matter how many years go by, you will never be forgotten. Thank you for all you taught me my first 16 years of my life and for all you taught me in your death.

Kimberly Dawn Mitchem
9/13/1974-10/08/1992